dementophobia
The story
i know it sound stupid to some ppl, like just another weird fear or whatever, but i swear this thing is real for me. i can’t stop thinkin about it—losing my mind, my memories, my self. dementia, alzheimer’s, all that… it terrifies me. like deep in my bones kind of fear. i’ll be sittin there watchin tv or just layin in bed, and boom, it hits me. “what if i forget who i am one day? what if i forget my mom, or where i live, or how to talk?” nd it ain’t even like i’m old or anything, i’m only 27, but the thought never leaves. it started after my grandma passed. she had alzheimer’s nd near the end she didn’t even remember me, nd that messed me up fr. i’d go visit her, nd she’d smile at me like i was a stranger, callin me names of people long gone. it was like watchin her fade while still breathin. nd now it’s like every little thing i forget makes me panic. forgot where i left my keys? maybe it’s startin. called someone by the wrong name? brain’s probly already slippin.
i keep tryin to tell myself it’s just anxiety, that i’m overthinkin, but it don’t help. i’ve googled the symptoms so many times i basically memorized the whole list. nd now it’s like i’m constantly watchin myself, checkin if i’m rememberin stuff right, testin myself with lil memory games in my head like a freak. sometimes i won’t even enjoy a moment cause i’m too scared i won’t remember it. nd that’s the worst part honestly. the fear is stealin the life i’m tryin to protect. like i’ll be hangin with friends nd instead of laughin, i’m thinkin “ok remember this, what are we talkin about? who’s here? what time is it?” nd if i mess up just once it’s like my whole body goes cold. my chest gets tight, my head spins, i start spiralin like “this is it, it’s happening, i’m losing it.” no one really gets it either. they just be like “bro ur fine” or “you’re too young for that stuff.” nd i know they mean well, but it don’t help. it just makes me feel more alone.
sometimes i feel like i’m already gone a little, like the fear itself is eatin away at me. it’s not even just memory loss i’m scared of—it’s losing me. who i am, what i love, the people i care about. i see older people walkin down the street lookin confused and i can’t help but wonder, “were they like me once?” did they have the same thoughts, the same fears, and then one day it all just slipped? maybe i sound crazy, but it’s real to me. nd i don’t kno how to stop it. therapy helped a bit but i still have bad days. sometimes real bad. nd i just sit there in the dark, tryin to hold onto everything i can remember, like if i think hard enough it’ll all stay. maybe it’s irrational, maybe i got some kinda health anxiety or whatever, but it feels like this shadow followin me everywhere i go. nd no matter how fast i run, it’s always there. this fear of forgettin, of fading, of losin who i am. dementophobia. that’s the word i found online. nd it’s ugly, it’s heavy, and it’s real as hell.

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I had never heard of dementophobia before, but reading your story really opened my eyes. Just want to send you all my support—you’re incredibly strong for sharing this.
yo, i totally feel this, man... like, i've been there too, just freakin out over forgettin' stuff... it's wild... can't tell you how many nights i just lay there, thinkin the same thing... it's a total mind trip, dude, like why does it even have to be like that? 😅 some days i swear i can't even remember why i walked into a room; maybe we're just wired this way or something, who knows... but yeah, guess it really gets ya where it hurts, huh? kinda makes me wonder if anyone really understands or if i'm just losin it... but hey, hang in there, i guess we all gotta deal with our stuff...
absolutely concur with your sentiments. this pervasive anxiety about cognitive degeneration is utterly relatable. “fear of losing oneself” to memory disorders is not unfounded, particularly given familial history. dismissive responses from others exhibit ignorance. self-monitoring for symptoms is an unending cycle. consulting mental health professionals might mitigate these intrusive fears, yet complete alleviation remains elusive. dismissive attitudes compound isolation. your narrative vividly encapsulates this pervasive angst.